My Dad is in Hospice

My dad went into hospice yesterday. After two years of searching for a diagnosis, a lung biopsy last month revealed he has an extremely rare disease called Erdheim-Chester. In short, his body is producing too many of a certain kind of white blood cell. The extra cells are overloading his organs and shutting them down.

My thoughts are too jumbled to write more. It all feels so unreal.


11 Responses to “My Dad is in Hospice”

  1. Karen Says:


    I am so sorry to hear about your Dad. I just lost my Father in January and it still feels unreal.

    Take care of yourself. I will be thinking of you.


  2. Sue Says:

    I’m so very sorry Kerrie. Do try to take care of yourself in this terribly difficult time.

  3. Mary Kay Says:

    I have been following your site for awhile but never posted. I am so sorry to hear about your father. Watching a parent go through this is difficult but you still have time with him. Take care of yourself!

    My father passed in Hospice so hopefully they will take good care of yours.
    Mary Kay

  4. Kelly McEnaney Says:

    I’m very sorry to hear about your Dad. Try to take care of yourself while you deal with this very emotional time. My thoughts and prayers will be with you and your family.


  5. Kim Says:


    I am very sorry to hear about your dad. I will add you, your father and your family to my thoughts and prayers.


  6. Jaymi Says:


    I’m really sorry to hear about your Dad. Life is hard enough isn’t it? I hope you are able to take care of yourself and not be in too much pain. I’ll keep you and your Dad in my thoughts.


  7. Carolyn Says:

    Dear Kerrie,

    I am very sorry to hear this. My thoughts go out to you at this difficult time. Carolyn from NH

  8. Stacia Says:

    I’m so sorry to hear it. Take care, you and your family are in my thoughts.

  9. wisdom Says:

    I am sorry to hear this as well. My thoughts and prayers go out to you and your family.

  10. deborah Says:

    Kerrie, I am terribly sorry about your Dad. You have gone through so much this year. You are in my prayers and thoughts today.

  11. Sigrid Says:


    That is so horrible. I really feel for you. It’s just terrible to watch a parent suffer and to feel so helpless.

    I don’t know if you’re spiritual because I haven’t read enough of the blog, but I hope that you have something to hold onto in terms of worldly support or faith.

    Sending strength and good wishes.

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